Tuesday, October 12, 2010

The Miracle Continues: A SMA Angel

Rewind:  They told us to take her home and make her comfortable - she would not see her second birthday.  Fast Forward:  She is thirteen and all she wants is a Big Time Rush pillowcase!  What?  That was October 18 1997 - "we think she has SMA Type 1".  So how can we take care of her?  There is no treatment or cure.  What do we do it she gets a cold, stomach ache etc?  There is nothing that can be done.  WTS? There has to be - this is not 1970 or 80 or 90 this is 1997!  Look on the internet -- yes there is information - not good but we need to find out what we can do where we can turn.  Are there other families?  Yes -- there are.  What are they doing?  She s 8 months old with a great smile, happy attitude and a love for life.  Fast Forward:  Who is Big Time Rush?  Just the new boy band out that every teenage girl is in love with!  Take that you doctors -- she is a teenager enjoying the crushes of a teenager.  Enjoying through the years all the hits -- first Lizzie McGuire ( Hillary Duff), Hananh Montana ( Miley Cyrus) and NOW Big Time Rush her first true big time Crush boy band.  Bring on the concerts -- we are ready.  Take Her Home and --- Make her Life Liveable.

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